We work with health departments across the UK to implement the UK Strategy for Rare Diseases to ensure that patients and families living with rare conditions have equitable access to high quality services, treatment and support. It’s the 13th in the series of our Flagship tri-annual Orphan Drugs & Rare Diseases event. On behalf of the operating committee, we are pleased to announce that the 2nd Global Congress on Rare Diseases and Orphan Drugs will be held during September 20-21, 2021. The conference will start at approximately 12.30 on Wednesday, 25 March and close at approximately 14.00 on Friday 27 March 2020. For more information please visit their website. Please do save the date and take time to join us for some latest updates and future projects to help people living and working with rare diseases. Rare Diseases 2020. Today is #WorldCancerDay! // use local CSS file as fallback if Bootstrap CDN fails ... http://download2.eurordis.org.s3-eu-west-1.amazonaws.com/ecrd/2020/Executive%20Summary%20Final%20Version.pdf. Check-in time: June 03, 2020, from 2 pm Check-out time: June 07, 2020, till 11 pm Please contact Irina Ovcharenko concerning all issues on early check-in, late check-out or prolongation of your stay. to all stakeholders of the rare disease community. document.write('